A novel OT type 1 diabetes assessment: Family-centered health management

Type 1 diabetes (T1D) is one of the most prevalent childhood conditions in the U.S., with increasing incidence rates noted across demographic groups (Centers for Disease Control and Prevention [CDC], 2022). T1D is a chronic condition in which the pancreas stops making insulin (DiMeglio et al., 2018), causing numerous symptoms that can negatively affect quality of life and function in everyday activities (Cho et al., 2021; Gallegos et al., 2023). T1D management requires relentlessly monitoring a child’s daily routines and tasks such as glycemic numbers; nutritional content and timing; physical activity; equipment ordering and management; weather/temperature; sleep and rest; and communication with educators, providers, and caregivers outside of the home. Because the condition is complex and requires extensive knowledge, caregiver involvement is crucial to their child’s successful diabetes management (ElSayed et al., 2023). Because caregivers of children are responsible for the majority, if not all, of the diabetes care and monitoring, it is imperative that they are not only involved in the child’s diabetes education and appointments, but also feel supported and confident in managing their child’s complex health needs (Jewell, Funk et al., 2022).