Well siblings of children with chronic conditions

Gerry Healy Marini, OTD, MS, OT; Caelin Jaskot, OTS, BSDrOT; and Judith Parker-Kent, OTD, EdS, OTR/L, FAOTA 05/02/2022

Marini, G. H., Jaskit, C., & Parker-Kent, J. (2022). Well siblings of children with chronic conditions. SIS Quarterly Practice Connections, 7(2), 5–6.

A Well Sibling’s Perspective

“Growing up as a sibling of a child with a chronic illness, guilt was a constant companion for me. I looked forward to going about my daily life, completing my self-care routine, choosing what I would wear and what I wanted to do. I would try and engage in extracurricular activities like art and sports, but only if I were able to get transportation. But I often wondered, why could I attempt these things and not my sister? Why was I healthy and she was not? It was so stressful for me to be the ‘normal’ child and teenager. I felt caught between two worlds; one focused on caring for my sister and the other trying to grow up with some type of normalcy.

From AOTA Press

Adults With Intellectual and Developmental Disabilities

As rates of autism continue to rise, and the needs of adults with intellectual and developmental disabilities become increasingly complex, a comprehensive client-centered approach to service delivery is imperative. Rather than a disability-focused text, this book seeks to promote principles of best practices and self-determination through an occupational therapy lens.

Broad in scope, Adults With Intellectual and Developmental Disabilities focuses on facilitating quality of life and intervening in effective, evidence-based ways with people with IDD, including those with ASD, adolescents transitioning to adulthood, aging adults, and people with dual diagnoses.

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